"All I want for Christmas is hope for a cure"
Help fund research that means the world to George and his family after he was born with a severe lung condition.
Lung surfactant deficiency is a rare condition that causes serious breathing problems. Babies like George who are born with a severe form of the disease will struggle to breathe shortly after birth and will need to be placed on a ventilator in intensive care.
Sadly, there is no cure and without a lung transplant, less than one in five children will live to celebrate their fifth birthday.
With your help this Christmas, we can raise £100,000 towards urgently needed research that could lead to a life-saving new treatment for babies born with this condition.
George’s story, by mum Rame
I’ll never forget the moment doctors told us George’s condition wasn’t ‘compatible with life’. That there was no cure and few treatments. I broke down sobbing.
The next few weeks, my husband and I were in a state of limbo waiting, hoping, that George would pull through. That I could tell his big sister, Holly, that everything was going to be OK. But we were warned to prepare for the worst, so we had George christened at his bedside and planned things no parent should ever have to think about.
After weeks of uncertainty, George became our little miracle. He defied the odds and was finally well enough to go home. I don’t think I can put into words the relief I felt. But George wasn’t cured and caring for a child with a rare condition hasn’t been easy.
George had to be hooked up to oxygen 24/7 and he became so scared of anything in his mouth potentially blocking his airway that he had to be tube-fed.
Whenever he caught a virus or had difficulties with his breathing or feeding, we were back in the hospital. There have been many ups and downs, but I feel so fortunate that George is here and doing well because I know the odds were against us. It breaks my heart to think there are families out there right now, facing a Christmas without their child because of this condition or another rare disease.
That’s why it’s such a relief to know Action is supporting research into lung surfactant deficiency. All I want for Christmas is hope for a cure, and it’s the work of organisations like Action that takes us a step closer to that day.
Please give what you can to help Action this Christmas and support this potentially life-saving treatment for children like my gorgeous George. Thank you! x
Fund life-changing new research
Learn more about the research you'll be helping to fund this Christmas
TOGETHER WE CAN HELP CHILDREN LIKE GEORGE
A gift this Christmas will help raise £100,000* towards research that could help save the lives of children born with lung surfactant deficiency.
*Any donations raised in excess of the £100,000 target, will be used wherever the need is greatest.