Around 2,000 babies are diagnosed with cerebral palsy every year in the UK.
What the future holds for these babies is sadly often unknown as the severity of symptoms associated with cerebral palsy varies so greatly from one child to another.
We know they will experience lifelong difficulties with movement and coordination, but parents are often keen to know exactly how their own child will be affected – whether they’ll be able to walk and live independently during adulthood.
Unfortunately, making predictions like this is difficult at present, leaving many families with uncertainty.
Action is determined to help, which is why we’re funding vital research into cerebral palsy that might one day provide answers.
Our brave little boy
Tom was just a baby when he was diagnosed with quadriplegic cerebral palsy - a severe physical disability that means both sides of his brain, which control his arms and legs, are affected.
He finds it extremely hard to control his arms and legs, has a lack of balance and suffers from muscle stiffness and weakness. But he is a brave and funny little boy who does not let cerebral palsy define him.
Alfie is a lively nine-year-old who loves jokes and playing tricks on people. “He’s a cheeky boy who always wants to have fun,” says mum Samantha. But for Alfie, who has cerebral palsy, having fun is a daily struggle.
At Alice's six week check after being born two months early, cystic masses were found on Alice's brain, a sign of severe and irreversible damage. Alice was diagnosed with a condition called periventricular leukomalacia. Cerebral palsy is the most common symptom and sadly Alice’s body and limbs are severely affected.
More about Action Medical Research
At Action we’ve been helping to save and change lives through medical research for over 65 years.
Today we fund a broad range of vital medical research across the UK to tackle premature birth, support children living with disabilities and develop treatments for rare and incurable diseases.