Cystic fibrosis is a serious, inherited condition that can make it hard for children to breathe and for their bodies to digest food.
Every week in the UK, around four people – many of them babies and children – are diagnosed with the condition.
There is no cure for cystic fibrosis. Treatment with medications and physiotherapy eases symptoms but this can be time-consuming and gruelling, sometimes taking as long as four hours per day, which can dramatically decrease children’s quality of life.
Action is funding vital research to help improve the quality of life of babies and children with this condition.
What causes cystic fibrosis?
Cystic fibrosis is caused by a faulty gene that a child inherits from both of their parents - it can't be caught or developed.
One in 25 people are carriers of the cystic fibrosis gene, but for a child to be born with cystic fibrosis they have to inherit two copies of the faulty gene – one from their mother and one from their father. Parents who both carry the faulty gene have a one in four chance of having a baby with cystic fibrosis.
A history of successes
For 65 years we’ve been saving and changing lives through medical research and have spent over £117m funding some amazing breakthroughs.
Today we fund a broad range of cutting-edge medical research across the UK to tackle premature birth, support children living with disabilities and develop treatments for rare and incurable diseases.