Lily is living with BPAN - a rare and devastating neurological disease for which there is no cure.
This disease strikes young children, causing them to develop slowly and to miss key developmental milestones. It leads to seizures, muscle problems, symptoms of Parkinson’s, dementia and eventually early death.
We want to work towards a cure and have promised to fund a potentially groundbreaking research study – but we need your help.
Cerebral palsy research
Tom was just a baby when he was diagnosed with quadriplegic cerebral palsy – a severe physical disability.
Now 6, his disability has affected all aspects of his life. He uses a wheelchair and everyday activities such as eating and playing with toys are challenging. He has also developed epilepsy.
Action is dedicated to helping children like Tom, which is why we’re funding several research projects into cerebral palsy.